National Down Syndrome Congress: https://www.ndsccenter.org/ The vision for NDSC is equal rights for all. This site has a lot of information in one place. Their main event each year is the National Down Syndrome Conference, where they have educational and social programs for parents, siblings, and self advocates.
National Down Syndrome Society: http://www.ndss.org/ The mission of the NDSS is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations, and become valued members of welcoming communities. There main event each year is the Buddy Walk. Different chapters will hold local Buddy Walks to fundraise for local programs. They also hold a Buddy Walk on Washington yearly were families and self advocates lobby congress about disability policy.
National Down Syndrome Governmental Affairs Facebook page: https://www.facebook.com/dsadvocates/?ref=bookmarks
This is a place to find legislative advocacy information Global Down Syndrome Foundation: http://www.globaldownsyndrome.org/our-story/about-gdsf/ Based in Denver Colorado, GDF is dedicated to significantly improving the lives of people with Down syndrome through research, medical care, education and advocacy.
The Friendship Circle: http://www.friendshipcircle.org/ Provides assistance and support to the families of children with special needs. In addition to helping those in need, the Friendship Circle enriches its vast network of volunteers by enabling them to reap the rewards of selfless giving. This link is for the headquarters in Michigan, but you may have a local chapter.
Parent to Parent: https://parent2parent.org.nz/ P2P services are usually funded through federal and state dollars. In Washington the Arc is the organization that overseas the programs. Here parents learn from parents.
Sleep Help, an organization that aims to help everyone get a great night’s sleep. We’ve been doing some research on the connection between Down syndrome and sleep quality, and created this resource from our findings: https://www.sleephelp.org/down-syndrome-sleep-apnea/
Parent Education Ideas:
Love and Logic: https://www.loveandlogic.com/classes-and-conferences A practical approach to parenting any child.
Wrightslaw: http://www.wrightslaw.com/ Parents, educators, advocates, and attorneys come to Wrightslaw for accurate, reliable information about special education law, education law, and advocacy for children with disabilities. One of the best suggestions given here is to join group that is specific to your child’s disability AND one that your child may not have, this keeps you better informed, perhaps an Autism group.
Academic Education Ideas
Orange County Learning Program: http://dsfoc.org/learning-program This program has been developed specifically for students with Ds.
Kids Included Together: https://www.kit.org/ Lots of resources for inclusion and links to other sources
Handwriting without Tears: A handwriting program that is used by a lot of schools and Occupational Therapists.
Washington State Resources:
Informing Families: http://informingfamilies.org/ is a fantastic webpage that breaks services and suggestions into age brackets.
Arc of Washington State: http://www.arcwa.org/ The Arc’s are very active in Washington, other states and areas may have different organizations that are similar. They provide classes and serve families and individuals with disability through the life span.
Arc of King County: http://www.arcofkingcounty.org/ This is the Arc for the Seattle area.
Down Syndrome Community of Puget Sound: http://downsyndromecommunity.org/ Our local area chapter of the NDSS