All I think I need to do is play the video… We are so proud of her. We gave her a questionnaire to fill out to help her focus her speech. She answered the questions, then we put it into Keynote as a prompt for the performance! She practiced at school, even with the speech […][read more]
Sam’s Top Secret Journal Series
Why write a series staring a person with Down syndrome?
There are so many reasons, but first and for most would be to create hope and expectations for parents, siblings and society. Dev and Sue once heard Karen Gaffney
(http://www.karengaffneyfoundation.com/) state: “I am not the exception, I am the possibility”. I think that is the same reason we wanted to have a literary figure for others to have in mind.
When you are a new parent you believe everything is possible. Your child will grow up to understand physics like *** Hawkins, sing like Barbara ***, play in the NFL like *** Elway, create like Oprah ***, be a doctor/lawyer/teacher… As the child grows into their own person those hopes and dreams get modified and the parent (hopefully) starts to consider realistic dreams for that child: college, family, a job…happiness… When you get an early diagnosis it seems all of those hopes and dreams are sucked into a vortex of doom. The dreams turn to worries. Our hope is to help keep those dreams alive for parents, kids and society. If we can help society change it’s viewpoint from measuring things someone can not do, to valuing ABILITY and appreciating differences each of us brings, than we will be happy.
The stories in the “Sam” series are fictional, but every thing that Sam does in the books is something our daughter Dev has done in real life. Does that mean every child with Down syndrome will be able to do the things that Sam does, of course not, every child is different, some will do more some less. But if you never knew about Anne Frank, Einstein, MLK, Mare Curie the list goes on and on, how limited our dreams would be. The stories written about these lager than life people expand our dreams and hopes for our own lives. Our goals may be kind of lofty but that is the reason for writing the books. We hope that you enjoy them, and share them freely.
Sean and Sue Adelman